And we're back..home!

So this visit at the hospital was terrible. The standard of care has greatly diminished since we officially finished chemo. And it's not just with us, other people have noticed the same thing. I will be writing a letter, and also bringing to the attention of the ward supervisor.

Anyways!! I had to push them to let us go home on an LOA today/tonight.. so we go back tomorrow morning to get some blood counts and a platelet transfusion. I am just so glad to be home again. Now that it's the end of treatment, it feels so different... it just is so much harder to be there. As well, it doesn't help that there is this beautiful little girl Alivia, in the room next to us who has Neuroblastoma. This cancerous disease in almost incurable. 1 child in 100,000 get this disease. Because it's so rare there is no money or funding going towards research or cures. So the little boy who just died a couple weeks ago had it.. and there is now 2 others on the ward with it. She has giant tumers growing out of her head, that is causing her intense pain.. she's on a morphine pump around the clock. She has a beautiful family, including a new baby sister. I kept stealing her and just holding her in our arms.. putting her to sleep.. smelling her baby smell.. such a beautiful thing in the hospital.

To this point I have no idea what our follow up treatment will be. As far as I know I will continue to be at the hospital twice a week until his counts go up. Then after that I am not sure. We are however planning a Great Wolf Lodge Party getaway.. and need 10 rooms booked to get a great deal! So in the next few months keep posted! If you are interested in becoming a part of the party for Lyric's successful fight beating cancer please let me know.

We may be sharing this part with some friends we met at the hospital who's son, Ethan, also had AML.. and just finished his last round as well. We thought it would be a nice celebration together.

So other than that... my computer has broken.. and I have had it fixed twice. Unfortuantly it's on it's last legs. And of course I use this for my photography.. which I have some business that is coming my way!! So I went to Best Buy to apply for a card and nope! denied! haha.. well, I will have to figure this one out..

My new room mate is moving in Sunday.. so I have lots to do! Lyric and Ave are very excited to have new house-mates!

The weather has been beautiful.. a glimpse into what is coming soon.. and I can't wait!

Life is more than busy!

We`ve been home.. enjoying life. Everything has been great. I started back working at the Market part time, I have an art show that I will be showcasing my art in next week, and my wonderful and dear friend is moving in with her son this Sunday... needless to say it`s been more than hectic.

Last night however, Lyric spiked a fever around 9 p.m... we were directed by the Oncologist to come the emerg department here at Mac. When we arrived, his fever was no longer existant... which has happened before for no reason. It could be that his blood levels are a little low.. it could be anything!

So I stayed all night in emerg, as there were no beds on the ward. So finally this afternoon we managed to get a bed. I`m tired.. they don`t have anywhere for you to sleep in emerg. So Lyric and I bunked together on the gernie.

If all goes well, I should be home Thursday..fingers crossed!

Avery is doing very well, she`s still happy and healthy as usual!