We got the results from the bone marrow test and lumbar puncture.. both tests are clear! He is still in remission.
He's having a real rough time being nauseous this time around.. so we are trying to manage that. sigh...
Thursday, November 26, 2009
Wednesday, November 25, 2009
Round 4 underway!!
His bloodcounts yesterday were juuuust good enough to do the lumbar puncture and marrow test. Then they admitted him and started chemo last night. We will find out the results of the tests over the next day or so... I'm hoping they are good!!
We are almost there.. one more round of chemo and life can return to some sort of normalcy. I still won't be able to return to work for a month or two after.. he will still be going through the effects of the chemo and his counts will take a bit to get back up. Also, a slew of testing that will be done to make sure everything is going well.
Today his chemo hit him hard, the Doc's say that the last couple rounds are hard... they get the sickest. So this morning there was a throw up session, and lots of nausea. So they ended up giving him a new drug.. Atavan. Of which made him high as a kite.. he kept saying he was on a rollercoaster and he saw me with 3 eyes.. he was slurring his words and laughing.. strange sight to see your child high. But i suppose it's better than the wretching of his gut and feeling like he's going to die. At one point he had the blankets over his head and was playing with his stuffed animal friend MAX from Where The Wild Things Are.. they were on an adventure! then Max came out of the blankets naked.. hehe..asked what he was naked he said they went skinny dipping. hehe..
Hopefully the week here will be uneventful!
We are almost there.. one more round of chemo and life can return to some sort of normalcy. I still won't be able to return to work for a month or two after.. he will still be going through the effects of the chemo and his counts will take a bit to get back up. Also, a slew of testing that will be done to make sure everything is going well.
Today his chemo hit him hard, the Doc's say that the last couple rounds are hard... they get the sickest. So this morning there was a throw up session, and lots of nausea. So they ended up giving him a new drug.. Atavan. Of which made him high as a kite.. he kept saying he was on a rollercoaster and he saw me with 3 eyes.. he was slurring his words and laughing.. strange sight to see your child high. But i suppose it's better than the wretching of his gut and feeling like he's going to die. At one point he had the blankets over his head and was playing with his stuffed animal friend MAX from Where The Wild Things Are.. they were on an adventure! then Max came out of the blankets naked.. hehe..asked what he was naked he said they went skinny dipping. hehe..
Hopefully the week here will be uneventful!
Monday, November 23, 2009
Round 4!
We are coming near round 4.. it was supposed to start today, but his blood counts (as of last Thursday) weren't good enough yet. So tomorrow we are back at Mac for blood counts to see where he's at.. if they are good then they will go ahead with the lumbar puncture and bone marrow test to see how the chemo is responding. Then we will start chemo right away!
I can't believe how healthy Lyric has been... going from practically living in the hospital to living normally at home for literally the last 3 weeks just amazes me. I am so thankful for this time we had at home with our family and friends.
Lyric and I are feeling rested and ready to continue this fight!!
I can't believe how healthy Lyric has been... going from practically living in the hospital to living normally at home for literally the last 3 weeks just amazes me. I am so thankful for this time we had at home with our family and friends.
Lyric and I are feeling rested and ready to continue this fight!!
Thursday, November 19, 2009
Uneventful...
There is not much new to report here! Things are good, Lyric has been happy, healthy and has had no problems.
Avery is great as well. She's battled a cold and Lyric (having no immune system) or I didn't get it.. of course he docs here don't attribute his excellent health to the natural remedies I have him on.
We are currently just waiting for his blood counts to come up to start his 4/5 chemo round. We are almost done!!
Avery is great as well. She's battled a cold and Lyric (having no immune system) or I didn't get it.. of course he docs here don't attribute his excellent health to the natural remedies I have him on.
We are currently just waiting for his blood counts to come up to start his 4/5 chemo round. We are almost done!!
Friday, November 13, 2009
RIP Gavin
In some previous posts I had mentioned a little boy named Gavin.. Lyric played with him while they were at Mac.
He recently underwent another bone marrow transplant that unfortunalty failed. Along with that he was suffering from a very bad fungal lung infection. They tried everything and unfortunatly today he passed away.
He was such an inspiration and sweet little boy.. he will be missed.
RIP Superhero Gavin.. we love you!
He recently underwent another bone marrow transplant that unfortunalty failed. Along with that he was suffering from a very bad fungal lung infection. They tried everything and unfortunatly today he passed away.
He was such an inspiration and sweet little boy.. he will be missed.
RIP Superhero Gavin.. we love you!
Thursday, November 12, 2009
Hospital and Back..
Monday night 8 p.m., Lyric started a fever with a headache. I called the on call Oncologist and she told me to bring him in. Lyric was NOT happy, and neither was I. There were no beds in the ward so we had to go to Emerg... of course the worst place for him. We stayed overnight, I slept in a chair, and we ended up in the ward at 5 p.m. the next day.
They did all the swabs and tests and everything came back negative. He had very low platelets and hemoglobin, almost non existent which could start a fever with headache. But with neutropenic kids they don't know for sure so they treated him for 48 hours of IV antibiotics and waited 24 hours to see if the fever returned. Which it didn't. I KNEW he was fine right from the start... he had no symptoms of any kind. So finally this afternoon today they let us go home.. hesitantly. The can be over protective, which is good I guess... but also not good. It's like chaperoning your kid to their first dance.. leave me alone! I said worse case scenario, we come back!!
Other than that, my parents are watching the kids for a couple days while I rest. I am tired.. and have reached my limit. When he came down with the fever, I just was not ready to go back yet. I was so exhausted from spending the week cleaning, organizing, dealing with the kids, fundraiser that I hadn't taken time to rest. But, I had no choice and had to go.. so the last few days have been quite rough on me.. and my adrenal fatigue has returned a bit. So I plan to take some time for me... to ground myself again and gain more energy to get through these last couple months. I need this to be a good parent and caregiver to my kids.. especially Lyric.
Avery is doing well, she is really starting to miss me.. I feel terrible. But I had a good talk with her tonight and told her it's going to be over soon and I have so many things I want to do with her.. I will make it up to her. When I am home (with the exception of the next couple days..) I spend oodles of time doing things with her.
And to my surprise, I have not been attacked anymore about getting that godforsaken flu shot. I think they now understand my beliefs.
They did all the swabs and tests and everything came back negative. He had very low platelets and hemoglobin, almost non existent which could start a fever with headache. But with neutropenic kids they don't know for sure so they treated him for 48 hours of IV antibiotics and waited 24 hours to see if the fever returned. Which it didn't. I KNEW he was fine right from the start... he had no symptoms of any kind. So finally this afternoon today they let us go home.. hesitantly. The can be over protective, which is good I guess... but also not good. It's like chaperoning your kid to their first dance.. leave me alone! I said worse case scenario, we come back!!
Other than that, my parents are watching the kids for a couple days while I rest. I am tired.. and have reached my limit. When he came down with the fever, I just was not ready to go back yet. I was so exhausted from spending the week cleaning, organizing, dealing with the kids, fundraiser that I hadn't taken time to rest. But, I had no choice and had to go.. so the last few days have been quite rough on me.. and my adrenal fatigue has returned a bit. So I plan to take some time for me... to ground myself again and gain more energy to get through these last couple months. I need this to be a good parent and caregiver to my kids.. especially Lyric.
Avery is doing well, she is really starting to miss me.. I feel terrible. But I had a good talk with her tonight and told her it's going to be over soon and I have so many things I want to do with her.. I will make it up to her. When I am home (with the exception of the next couple days..) I spend oodles of time doing things with her.
And to my surprise, I have not been attacked anymore about getting that godforsaken flu shot. I think they now understand my beliefs.
Monday, November 9, 2009
What a wonderful weekend!
Ooooohh it's been sooo nice to be at home. I am so happy and settled, and feel at peace.
We had a pretty uneventful week, so there was not much to write about thankfully. This past weekend however was quite exciting!
Friday night my wonderful and dear friend Shannon offered to watch my kids so I could have some time out for myself.. I was invited to an event that I really didn't want to miss. An opportunity to see my friends and relax. So she came to my house and stayed overnight with her 2 kids. I had a great night out... felt so good to have my own time away with some friends... releasing some of that negative energy within.
We awoke in the morning, the kids were joyfully playing together. I made pumpkin spice waffles.. had tea and then Shannon generously helped me clean my house all day! The house needed a real good clean. wow. It's amazing how the stress lifts and how good it feels once the house is nice and clean, smells great and looks good! Thanks Shannon, you made my weekend, you are an inspiration and amazing person...love you!
Saturday night was the Benefit for Lyric being put on by Picasso's (my salon)... yes, I have a tight relationship with my salon..(and a slight obsession with my hair..)
My dear and old friends from Toronto area came and stayed overnight to attend...thanks again girls.. it was such a wonderful treat to see you all and have your love and support! The folks from the salon did an amazing job, putting so much effort into helping us. I can't thank you guys enough. The music was wonderful! And we had a great turnout.
Lyric has been great over the last week, no more nausea and he's back to normal. He is neutropenic and with all this sickness around I decided to keep him inside. However,Avery woke up with a hoarse cough this morning... sigh. I knew at some point my blissful time at home would come to an end. I am hoping and praying Lyric does not catch it.
We are all doing very well, enjoying this beautifully warm and sunny fall weather.
We had a pretty uneventful week, so there was not much to write about thankfully. This past weekend however was quite exciting!
Friday night my wonderful and dear friend Shannon offered to watch my kids so I could have some time out for myself.. I was invited to an event that I really didn't want to miss. An opportunity to see my friends and relax. So she came to my house and stayed overnight with her 2 kids. I had a great night out... felt so good to have my own time away with some friends... releasing some of that negative energy within.
We awoke in the morning, the kids were joyfully playing together. I made pumpkin spice waffles.. had tea and then Shannon generously helped me clean my house all day! The house needed a real good clean. wow. It's amazing how the stress lifts and how good it feels once the house is nice and clean, smells great and looks good! Thanks Shannon, you made my weekend, you are an inspiration and amazing person...love you!
Saturday night was the Benefit for Lyric being put on by Picasso's (my salon)... yes, I have a tight relationship with my salon..(and a slight obsession with my hair..)
My dear and old friends from Toronto area came and stayed overnight to attend...thanks again girls.. it was such a wonderful treat to see you all and have your love and support! The folks from the salon did an amazing job, putting so much effort into helping us. I can't thank you guys enough. The music was wonderful! And we had a great turnout.
Lyric has been great over the last week, no more nausea and he's back to normal. He is neutropenic and with all this sickness around I decided to keep him inside. However,Avery woke up with a hoarse cough this morning... sigh. I knew at some point my blissful time at home would come to an end. I am hoping and praying Lyric does not catch it.
We are all doing very well, enjoying this beautifully warm and sunny fall weather.
Tuesday, November 3, 2009
H1N1 is killing me.
Can you believe they would not let us go yesterday to come home until 3 medical staff had to literally ram the H1N1 shot down my throat.
You must get it for Lyric. I asked why?
Because he is immuno compromised. And getting the flu could be bad for him.
Yes, I understand that.. but can you guarantee me that he will be fine from getting the shot?
No.. we cannot. There is no testing done, and we don't' know enough.
Oh.. ok, so you want me to stick some more neurologically toxic crap into my son's system that hasn't even been tested, or otherwise use him as a guinea pig.
No, we are confident he will benefit from the shot.
Oh.. ok. So what about the boy, Cameron, who is younger than Lyric, also had a fungal infection but persevered though having H1N1?
Well, that's a good outcome, but there are bad ones, we don't' know how his body will react. We have other kids in ICU with it and they aren't so well.
Ok, so can you promise me he won't get Guillian Barre syndrome, or become autistic?
No. We can't.
Throughout this conversation there are looks of disgust written on their face. I have wronged their belief in the shot, and now I am a bad mother for not getting a shot for my son and potentially threatening his life. But I do have faith in Lyric's ability to fight off this flu.. of which is a completely normal flu. Maybe it lasts a bit longer, but statistically, there are no more deaths than the regular flu. And the deaths all have underlying causes.
What happened here? Why this big push? Is it stemming from the government? pharma companies? the media?
We have come to a bottleneck.. fear in on everyone's faces. People have no trust in the medical system, the government, the pharmaceutical company, the media.. and their own doctors. I seriously can for see a shift change in how people have had enough and are starting to take charge of their health.. they are starting to speak up, demand and ask questions. The sad part is who do you believe?
Through all the holistic research I have done, I have learned much about our bodies. They are efficient and quite powerful when treated right. We are capable of fighting off any sickness, and building strong immunities. With using what nature offers us, good whole food, healing herbs and vitamins, good hand washing, sleeping well, drinking lots of water and maintaining good stress levels we can overcome almost all sickness.
I have read that this shot was developed in the 50's to combat the swine flu. They stopped the making of it. There were more deaths and reactions from the shot than the actual flu. And you know the people who lived in that era are not getting the H1N1 virus, statistically they are the age group that is least affected. Why? Because they had it, survived it and are are immune to it. They are all fine! They have howevder remade the same shot.. yes, the one that killed more people than it saved and added another neurotoxic substance called Squalene... an adjuvent. And then with NO testing on the public they decide all high risk people should get it.. pregnant ladies, small children, or children with serious health issues (such as Lyric) first. Oh, thanks again for making them the guinea pigs.
No, I am still not getting this shot, I will endure the strong looks, the awkward grins.. all IN protection of my child. They seem to think I'm not protecting him, when in fact I am.
I truly wish some of these conventional doctors would get their heads out from the cloud they are in and question.. see that there are other ways to treat things other than shots, meds, chemicals...
I do see a change coming. I am anxious to see how the world will change in the next year. It will be exciting.
On another note..
Lyric an I are home and loving it of course. I am always afraid that the next day we will be back with some sort of fever... especially with this time of year. So I don't' even unpack. He is doing well, a little nauseous today but has energy and is happy.
You must get it for Lyric. I asked why?
Because he is immuno compromised. And getting the flu could be bad for him.
Yes, I understand that.. but can you guarantee me that he will be fine from getting the shot?
No.. we cannot. There is no testing done, and we don't' know enough.
Oh.. ok, so you want me to stick some more neurologically toxic crap into my son's system that hasn't even been tested, or otherwise use him as a guinea pig.
No, we are confident he will benefit from the shot.
Oh.. ok. So what about the boy, Cameron, who is younger than Lyric, also had a fungal infection but persevered though having H1N1?
Well, that's a good outcome, but there are bad ones, we don't' know how his body will react. We have other kids in ICU with it and they aren't so well.
Ok, so can you promise me he won't get Guillian Barre syndrome, or become autistic?
No. We can't.
Throughout this conversation there are looks of disgust written on their face. I have wronged their belief in the shot, and now I am a bad mother for not getting a shot for my son and potentially threatening his life. But I do have faith in Lyric's ability to fight off this flu.. of which is a completely normal flu. Maybe it lasts a bit longer, but statistically, there are no more deaths than the regular flu. And the deaths all have underlying causes.
What happened here? Why this big push? Is it stemming from the government? pharma companies? the media?
We have come to a bottleneck.. fear in on everyone's faces. People have no trust in the medical system, the government, the pharmaceutical company, the media.. and their own doctors. I seriously can for see a shift change in how people have had enough and are starting to take charge of their health.. they are starting to speak up, demand and ask questions. The sad part is who do you believe?
Through all the holistic research I have done, I have learned much about our bodies. They are efficient and quite powerful when treated right. We are capable of fighting off any sickness, and building strong immunities. With using what nature offers us, good whole food, healing herbs and vitamins, good hand washing, sleeping well, drinking lots of water and maintaining good stress levels we can overcome almost all sickness.
I have read that this shot was developed in the 50's to combat the swine flu. They stopped the making of it. There were more deaths and reactions from the shot than the actual flu. And you know the people who lived in that era are not getting the H1N1 virus, statistically they are the age group that is least affected. Why? Because they had it, survived it and are are immune to it. They are all fine! They have howevder remade the same shot.. yes, the one that killed more people than it saved and added another neurotoxic substance called Squalene... an adjuvent. And then with NO testing on the public they decide all high risk people should get it.. pregnant ladies, small children, or children with serious health issues (such as Lyric) first. Oh, thanks again for making them the guinea pigs.
No, I am still not getting this shot, I will endure the strong looks, the awkward grins.. all IN protection of my child. They seem to think I'm not protecting him, when in fact I am.
I truly wish some of these conventional doctors would get their heads out from the cloud they are in and question.. see that there are other ways to treat things other than shots, meds, chemicals...
I do see a change coming. I am anxious to see how the world will change in the next year. It will be exciting.
On another note..
Lyric an I are home and loving it of course. I am always afraid that the next day we will be back with some sort of fever... especially with this time of year. So I don't' even unpack. He is doing well, a little nauseous today but has energy and is happy.
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