There is not much new to report here! Things are good, Lyric has been happy, healthy and has had no problems.
Avery is great as well. She's battled a cold and Lyric (having no immune system) or I didn't get it.. of course he docs here don't attribute his excellent health to the natural remedies I have him on.
We are currently just waiting for his blood counts to come up to start his 4/5 chemo round. We are almost done!!
Thursday, November 19, 2009
Friday, November 13, 2009
RIP Gavin
In some previous posts I had mentioned a little boy named Gavin.. Lyric played with him while they were at Mac.
He recently underwent another bone marrow transplant that unfortunalty failed. Along with that he was suffering from a very bad fungal lung infection. They tried everything and unfortunatly today he passed away.
He was such an inspiration and sweet little boy.. he will be missed.
RIP Superhero Gavin.. we love you!
He recently underwent another bone marrow transplant that unfortunalty failed. Along with that he was suffering from a very bad fungal lung infection. They tried everything and unfortunatly today he passed away.
He was such an inspiration and sweet little boy.. he will be missed.
RIP Superhero Gavin.. we love you!
Thursday, November 12, 2009
Hospital and Back..
Monday night 8 p.m., Lyric started a fever with a headache. I called the on call Oncologist and she told me to bring him in. Lyric was NOT happy, and neither was I. There were no beds in the ward so we had to go to Emerg... of course the worst place for him. We stayed overnight, I slept in a chair, and we ended up in the ward at 5 p.m. the next day.
They did all the swabs and tests and everything came back negative. He had very low platelets and hemoglobin, almost non existent which could start a fever with headache. But with neutropenic kids they don't know for sure so they treated him for 48 hours of IV antibiotics and waited 24 hours to see if the fever returned. Which it didn't. I KNEW he was fine right from the start... he had no symptoms of any kind. So finally this afternoon today they let us go home.. hesitantly. The can be over protective, which is good I guess... but also not good. It's like chaperoning your kid to their first dance.. leave me alone! I said worse case scenario, we come back!!
Other than that, my parents are watching the kids for a couple days while I rest. I am tired.. and have reached my limit. When he came down with the fever, I just was not ready to go back yet. I was so exhausted from spending the week cleaning, organizing, dealing with the kids, fundraiser that I hadn't taken time to rest. But, I had no choice and had to go.. so the last few days have been quite rough on me.. and my adrenal fatigue has returned a bit. So I plan to take some time for me... to ground myself again and gain more energy to get through these last couple months. I need this to be a good parent and caregiver to my kids.. especially Lyric.
Avery is doing well, she is really starting to miss me.. I feel terrible. But I had a good talk with her tonight and told her it's going to be over soon and I have so many things I want to do with her.. I will make it up to her. When I am home (with the exception of the next couple days..) I spend oodles of time doing things with her.
And to my surprise, I have not been attacked anymore about getting that godforsaken flu shot. I think they now understand my beliefs.
They did all the swabs and tests and everything came back negative. He had very low platelets and hemoglobin, almost non existent which could start a fever with headache. But with neutropenic kids they don't know for sure so they treated him for 48 hours of IV antibiotics and waited 24 hours to see if the fever returned. Which it didn't. I KNEW he was fine right from the start... he had no symptoms of any kind. So finally this afternoon today they let us go home.. hesitantly. The can be over protective, which is good I guess... but also not good. It's like chaperoning your kid to their first dance.. leave me alone! I said worse case scenario, we come back!!
Other than that, my parents are watching the kids for a couple days while I rest. I am tired.. and have reached my limit. When he came down with the fever, I just was not ready to go back yet. I was so exhausted from spending the week cleaning, organizing, dealing with the kids, fundraiser that I hadn't taken time to rest. But, I had no choice and had to go.. so the last few days have been quite rough on me.. and my adrenal fatigue has returned a bit. So I plan to take some time for me... to ground myself again and gain more energy to get through these last couple months. I need this to be a good parent and caregiver to my kids.. especially Lyric.
Avery is doing well, she is really starting to miss me.. I feel terrible. But I had a good talk with her tonight and told her it's going to be over soon and I have so many things I want to do with her.. I will make it up to her. When I am home (with the exception of the next couple days..) I spend oodles of time doing things with her.
And to my surprise, I have not been attacked anymore about getting that godforsaken flu shot. I think they now understand my beliefs.
Monday, November 9, 2009
What a wonderful weekend!
Ooooohh it's been sooo nice to be at home. I am so happy and settled, and feel at peace.
We had a pretty uneventful week, so there was not much to write about thankfully. This past weekend however was quite exciting!
Friday night my wonderful and dear friend Shannon offered to watch my kids so I could have some time out for myself.. I was invited to an event that I really didn't want to miss. An opportunity to see my friends and relax. So she came to my house and stayed overnight with her 2 kids. I had a great night out... felt so good to have my own time away with some friends... releasing some of that negative energy within.
We awoke in the morning, the kids were joyfully playing together. I made pumpkin spice waffles.. had tea and then Shannon generously helped me clean my house all day! The house needed a real good clean. wow. It's amazing how the stress lifts and how good it feels once the house is nice and clean, smells great and looks good! Thanks Shannon, you made my weekend, you are an inspiration and amazing person...love you!
Saturday night was the Benefit for Lyric being put on by Picasso's (my salon)... yes, I have a tight relationship with my salon..(and a slight obsession with my hair..)
My dear and old friends from Toronto area came and stayed overnight to attend...thanks again girls.. it was such a wonderful treat to see you all and have your love and support! The folks from the salon did an amazing job, putting so much effort into helping us. I can't thank you guys enough. The music was wonderful! And we had a great turnout.
Lyric has been great over the last week, no more nausea and he's back to normal. He is neutropenic and with all this sickness around I decided to keep him inside. However,Avery woke up with a hoarse cough this morning... sigh. I knew at some point my blissful time at home would come to an end. I am hoping and praying Lyric does not catch it.
We are all doing very well, enjoying this beautifully warm and sunny fall weather.
We had a pretty uneventful week, so there was not much to write about thankfully. This past weekend however was quite exciting!
Friday night my wonderful and dear friend Shannon offered to watch my kids so I could have some time out for myself.. I was invited to an event that I really didn't want to miss. An opportunity to see my friends and relax. So she came to my house and stayed overnight with her 2 kids. I had a great night out... felt so good to have my own time away with some friends... releasing some of that negative energy within.
We awoke in the morning, the kids were joyfully playing together. I made pumpkin spice waffles.. had tea and then Shannon generously helped me clean my house all day! The house needed a real good clean. wow. It's amazing how the stress lifts and how good it feels once the house is nice and clean, smells great and looks good! Thanks Shannon, you made my weekend, you are an inspiration and amazing person...love you!
Saturday night was the Benefit for Lyric being put on by Picasso's (my salon)... yes, I have a tight relationship with my salon..(and a slight obsession with my hair..)
My dear and old friends from Toronto area came and stayed overnight to attend...thanks again girls.. it was such a wonderful treat to see you all and have your love and support! The folks from the salon did an amazing job, putting so much effort into helping us. I can't thank you guys enough. The music was wonderful! And we had a great turnout.
Lyric has been great over the last week, no more nausea and he's back to normal. He is neutropenic and with all this sickness around I decided to keep him inside. However,Avery woke up with a hoarse cough this morning... sigh. I knew at some point my blissful time at home would come to an end. I am hoping and praying Lyric does not catch it.
We are all doing very well, enjoying this beautifully warm and sunny fall weather.
Tuesday, November 3, 2009
H1N1 is killing me.
Can you believe they would not let us go yesterday to come home until 3 medical staff had to literally ram the H1N1 shot down my throat.
You must get it for Lyric. I asked why?
Because he is immuno compromised. And getting the flu could be bad for him.
Yes, I understand that.. but can you guarantee me that he will be fine from getting the shot?
No.. we cannot. There is no testing done, and we don't' know enough.
Oh.. ok, so you want me to stick some more neurologically toxic crap into my son's system that hasn't even been tested, or otherwise use him as a guinea pig.
No, we are confident he will benefit from the shot.
Oh.. ok. So what about the boy, Cameron, who is younger than Lyric, also had a fungal infection but persevered though having H1N1?
Well, that's a good outcome, but there are bad ones, we don't' know how his body will react. We have other kids in ICU with it and they aren't so well.
Ok, so can you promise me he won't get Guillian Barre syndrome, or become autistic?
No. We can't.
Throughout this conversation there are looks of disgust written on their face. I have wronged their belief in the shot, and now I am a bad mother for not getting a shot for my son and potentially threatening his life. But I do have faith in Lyric's ability to fight off this flu.. of which is a completely normal flu. Maybe it lasts a bit longer, but statistically, there are no more deaths than the regular flu. And the deaths all have underlying causes.
What happened here? Why this big push? Is it stemming from the government? pharma companies? the media?
We have come to a bottleneck.. fear in on everyone's faces. People have no trust in the medical system, the government, the pharmaceutical company, the media.. and their own doctors. I seriously can for see a shift change in how people have had enough and are starting to take charge of their health.. they are starting to speak up, demand and ask questions. The sad part is who do you believe?
Through all the holistic research I have done, I have learned much about our bodies. They are efficient and quite powerful when treated right. We are capable of fighting off any sickness, and building strong immunities. With using what nature offers us, good whole food, healing herbs and vitamins, good hand washing, sleeping well, drinking lots of water and maintaining good stress levels we can overcome almost all sickness.
I have read that this shot was developed in the 50's to combat the swine flu. They stopped the making of it. There were more deaths and reactions from the shot than the actual flu. And you know the people who lived in that era are not getting the H1N1 virus, statistically they are the age group that is least affected. Why? Because they had it, survived it and are are immune to it. They are all fine! They have howevder remade the same shot.. yes, the one that killed more people than it saved and added another neurotoxic substance called Squalene... an adjuvent. And then with NO testing on the public they decide all high risk people should get it.. pregnant ladies, small children, or children with serious health issues (such as Lyric) first. Oh, thanks again for making them the guinea pigs.
No, I am still not getting this shot, I will endure the strong looks, the awkward grins.. all IN protection of my child. They seem to think I'm not protecting him, when in fact I am.
I truly wish some of these conventional doctors would get their heads out from the cloud they are in and question.. see that there are other ways to treat things other than shots, meds, chemicals...
I do see a change coming. I am anxious to see how the world will change in the next year. It will be exciting.
On another note..
Lyric an I are home and loving it of course. I am always afraid that the next day we will be back with some sort of fever... especially with this time of year. So I don't' even unpack. He is doing well, a little nauseous today but has energy and is happy.
You must get it for Lyric. I asked why?
Because he is immuno compromised. And getting the flu could be bad for him.
Yes, I understand that.. but can you guarantee me that he will be fine from getting the shot?
No.. we cannot. There is no testing done, and we don't' know enough.
Oh.. ok, so you want me to stick some more neurologically toxic crap into my son's system that hasn't even been tested, or otherwise use him as a guinea pig.
No, we are confident he will benefit from the shot.
Oh.. ok. So what about the boy, Cameron, who is younger than Lyric, also had a fungal infection but persevered though having H1N1?
Well, that's a good outcome, but there are bad ones, we don't' know how his body will react. We have other kids in ICU with it and they aren't so well.
Ok, so can you promise me he won't get Guillian Barre syndrome, or become autistic?
No. We can't.
Throughout this conversation there are looks of disgust written on their face. I have wronged their belief in the shot, and now I am a bad mother for not getting a shot for my son and potentially threatening his life. But I do have faith in Lyric's ability to fight off this flu.. of which is a completely normal flu. Maybe it lasts a bit longer, but statistically, there are no more deaths than the regular flu. And the deaths all have underlying causes.
What happened here? Why this big push? Is it stemming from the government? pharma companies? the media?
We have come to a bottleneck.. fear in on everyone's faces. People have no trust in the medical system, the government, the pharmaceutical company, the media.. and their own doctors. I seriously can for see a shift change in how people have had enough and are starting to take charge of their health.. they are starting to speak up, demand and ask questions. The sad part is who do you believe?
Through all the holistic research I have done, I have learned much about our bodies. They are efficient and quite powerful when treated right. We are capable of fighting off any sickness, and building strong immunities. With using what nature offers us, good whole food, healing herbs and vitamins, good hand washing, sleeping well, drinking lots of water and maintaining good stress levels we can overcome almost all sickness.
I have read that this shot was developed in the 50's to combat the swine flu. They stopped the making of it. There were more deaths and reactions from the shot than the actual flu. And you know the people who lived in that era are not getting the H1N1 virus, statistically they are the age group that is least affected. Why? Because they had it, survived it and are are immune to it. They are all fine! They have howevder remade the same shot.. yes, the one that killed more people than it saved and added another neurotoxic substance called Squalene... an adjuvent. And then with NO testing on the public they decide all high risk people should get it.. pregnant ladies, small children, or children with serious health issues (such as Lyric) first. Oh, thanks again for making them the guinea pigs.
No, I am still not getting this shot, I will endure the strong looks, the awkward grins.. all IN protection of my child. They seem to think I'm not protecting him, when in fact I am.
I truly wish some of these conventional doctors would get their heads out from the cloud they are in and question.. see that there are other ways to treat things other than shots, meds, chemicals...
I do see a change coming. I am anxious to see how the world will change in the next year. It will be exciting.
On another note..
Lyric an I are home and loving it of course. I am always afraid that the next day we will be back with some sort of fever... especially with this time of year. So I don't' even unpack. He is doing well, a little nauseous today but has energy and is happy.
Saturday, October 31, 2009
Some Photos!
Avery applying her lip gloss. "no, mommie, I can do it."
Watching BOB the Blob in 3D
Paul aka Mr T. I Pity the fool!
Avery, Miss Barbie Mariposa
Stick em up!
Dexter, sweet baby boy with a terminal tumor in his leg.
Lyric in his holiday jammies.
Couple of the amazing nurses
Happy Halloween!
So I had my wish granted and we are now able to do the cerebellum test at 9 pm, then administer the chemo at 11 p.m.. Stupid...sheesh. Anyways, for the next 3 rounds I will have to remind them of this. Hopefully I won't have to jump through hoops.
We had a great visit today with Avery and Lyric's Dad. We spent time doing games and things together. We bought a webcam for the computer at the house so we can talk online now and see eachother. It's nice to be able to see them.. including Lyric's cat Annie!
Lyric wasn't feeling so hot today. Lots of nausea and vomited a bit. He could not eat hardly at all today.. I am not so concerned about this yet. Tomorrow is his last day of chemo and I am sure once home he will eat and feel much better.
We have been pushed for all of us to get the H1N1 shot. Including Lyric. Which I find hard to believe... immuno suppressed people are not supposed to get shots. Plus, as most of you know I don't believe in shots anyways. But if I had to for the safety of Lyric (like with the chicken pox shot for Avery) I will. I spoke to Jane about it and she stated that she could not give a yes or no answer because she doesn't know enough about the actual sickness. But she did have some concerns about the Adjuvent and Thimoserol (Mercury) ... after doing much digging and research I found many wonderful articles by trusted sources outlining the dangers of these additives. The Thimoserol is actually banned in most of Europe. These additives can cause major damage to your brain and immuno dysfunction. And not necessarily now, but in the future. There have been hardly any testing done on a shot that they put together so quickly, especially on children who are immuno compromised. I will not take the chance on any of us. Jane did say that it is the flu, and that with strong immune system and proper handwashing we should be safe. There are already reports from the hospital level (and of course they aren't supposed to talk about it) that there have been several cases of people coming in with immuno dysfunction (such as paralysis).
Here is a wonderful trusted website for great information if your interested:
http://www.vran.org/ (the vaccination risk awareness network)
Everyone of course has different views and concerns about this, and we are all panicking. Thanks to the media of course. But, to be realistic of course apparently you have a greater chance of dying in a car crash driving to get your shot than actually getting the flu itself. It will be hard for me with having Avery going to school and bringing home bugs... I pray she doesn't bring it home but if she does Jane says Tamiflu should be just fine.
We had a great visit today with Avery and Lyric's Dad. We spent time doing games and things together. We bought a webcam for the computer at the house so we can talk online now and see eachother. It's nice to be able to see them.. including Lyric's cat Annie!
Lyric wasn't feeling so hot today. Lots of nausea and vomited a bit. He could not eat hardly at all today.. I am not so concerned about this yet. Tomorrow is his last day of chemo and I am sure once home he will eat and feel much better.
We have been pushed for all of us to get the H1N1 shot. Including Lyric. Which I find hard to believe... immuno suppressed people are not supposed to get shots. Plus, as most of you know I don't believe in shots anyways. But if I had to for the safety of Lyric (like with the chicken pox shot for Avery) I will. I spoke to Jane about it and she stated that she could not give a yes or no answer because she doesn't know enough about the actual sickness. But she did have some concerns about the Adjuvent and Thimoserol (Mercury) ... after doing much digging and research I found many wonderful articles by trusted sources outlining the dangers of these additives. The Thimoserol is actually banned in most of Europe. These additives can cause major damage to your brain and immuno dysfunction. And not necessarily now, but in the future. There have been hardly any testing done on a shot that they put together so quickly, especially on children who are immuno compromised. I will not take the chance on any of us. Jane did say that it is the flu, and that with strong immune system and proper handwashing we should be safe. There are already reports from the hospital level (and of course they aren't supposed to talk about it) that there have been several cases of people coming in with immuno dysfunction (such as paralysis).
Here is a wonderful trusted website for great information if your interested:
http://www.vran.org/ (the vaccination risk awareness network)
Everyone of course has different views and concerns about this, and we are all panicking. Thanks to the media of course. But, to be realistic of course apparently you have a greater chance of dying in a car crash driving to get your shot than actually getting the flu itself. It will be hard for me with having Avery going to school and bringing home bugs... I pray she doesn't bring it home but if she does Jane says Tamiflu should be just fine.
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