We had Avery's 6th birthday here at the hospital. We tried to explain to her that this year we can't really have a party for her.. but that we would make it up to her. Grampa and Grandma and Aunt Heather came. I had decorated the room with a birthday banner, streamers, balloons and her very own roses. We ordered pizza, had a strawberry vanilla cake and just hung out while she opened her gifts. She enjoyed it, she was a little upset she wasn't having a party with her friends.. but it's just not a good time. Avery made friends with Anthony, a 13 year old mentally challenged boy (in wheelchair) who doesn't say much except hi, bye, and bella (he's Italian..) and giving him high 5's.. she turned on the music and danced with him. Talked with him... she was wonderful. At that moment I realized what a sole she is.. so accepting and patient. Loves all walks of life. She tried so hard to make him laugh and smile. I think she would work well in a field like that.
As for Lyric, his fever still persists. Just when he seems to be doing better, he slips back into the red zone. They are monitoring how far between and how high his fevers are. That way they will see if the antibiotic is working.. at this point they are thinking that they may pull his hickman.. even though the cultures are coming back negative. Apparently the antibiotic can kill the bacteria, but leave it dead in the body or tubes, causing fevers still. He got his diarrhea back.. and goes through chills. He is now starting a cough, says he has a tickle in his throat. They (the doc's) think there may be something else brewing such as a fungal infection. So they may start treating him for that if the fever doesn't let up in 24 hours or so. Fungal infections take months to get rid of... sigh.. He's still not eating much.. I'm pretty much force feeding him. Little bites here and there.. just to have something in him.
I feel so bad for him... he hates being here and now we know we will be here at Christmas. If anyone is able to stop by around Christmas to see him, that may make him feel better. We will be alone here pretty much.
I still have shopping to do.. so I will have to find a way to get out and get some done. We will be trying to manage Avery for the 2 weeks as well while she's off..
Thanks Tara for coming and visiting today.. it was so wonderful to see you and get out for a bit.
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Let me know if you need someone for Avery at all during the holidays...the only days I'm not available is the 24, 25 and 26 so just give me a shout.
ReplyDeleteYou're doing an awesome job, Sarah...keep it up and take care of yourself!!
As always, lots of healing thoughts for Lyric.
xo
Sounds like things are settling down a bit.
ReplyDeleteAlso sounds like Avery had a wonderful little birthday party there. Both your kids seem like such compassionate and enlightened little souls...yay for you!
I'm a single mom to a 13 year old daughter, and will be home throughout the holidays. If Avery wants to hang out here at all, she's more than welcome. (I've known Ayre for years - she can vouch that I would take good care of her - lol).
Take care & healing hugs to Lyric.
Sarah any time dear. I am glad my kids have finally been cold free so I could visit! I will see what the week of Christmas holds to pop in for a visit, my in-laws will be down but I am sure they will understand!
ReplyDeleteAvery is so special she is wonderful, I wish and hope my girls were just like her! Hugs to Lyric and glad he liked the book!
Tara
Avery is an amazing little girl. I knew that from the first second I met her. I feel soo badly for her that her birthday was at the hospital but from the sounds of it you made it special for her none the less.
ReplyDeleteAshley C