Scary day...

He had a great night.. woke up and started his fever again. Right back up to 40.

All throughout the day his fever would go up.. and back down.. the Tylenol did nothing, but they still continue to give it. Even though they tell me it's hard on the liver. great.

He hadn't eaten all day.. they said they were going to put him on the TPN.. IV nutrition, but I said no.. give me the day. I'll get him to eat. And I did. It was difficult to force him to do it.. I made about 5 different foods.. he had NO desire for any of them. I said he could have anything he wanted.. and nothing tickled his fancy.

We got the results back from the initial tests they did in the Falls. He does have an infection. A streptococcus one.. and it's now in his blood. Common in AML kids.. they just don't have the membrane in the throat and mouth to battle it..and that is where it's commonly found. So it starts there then ends up in the bloodstream. Now it may be in his intestines too.. which is not good.

They started him on a new antibiotic.. he's now on 4. This new one gave him hives.. ugh. So they gave him benedryl of course. They said that they will have to give it every time when he gets the antibiotic. Sure, load him with more shit. gah.. i can't seem to wrap my head around mixing so many drugs together and how that effects the body.

So the infectious disease docs come in.. there were like 5 of them. They studied Lyric and determined that the new antibiotic was the best one.

They are sending his stool away for testing to see if he in fact has c. difficile or other bugs in it which is common.

They had an emergency echo done.. they came to the room within minutes. Apparently the infection can get into his heart and affect it. Ugh,, can it get any worse? He also had a x-ray on his chest and good news, that was clear!

He is sick, all day nauseous, cold, scared, mad, sad.. crying.. poor little guy upset that he has to wear a diaper cause he can't make it sometimes with the diarrhea. He's embarrassed.

So apparently tey may take his hickman out, it can be infected too, and treat the infection. It could take a month. Or as little as a week depending on his response to the meds. Then they would put him under again to insert a new tube to start his last round of chemo. ughhh!

I was scared out of my tree today. The docs and nurses are in our room constantly monitoring him. He's hooked up to machines to monitor his oxygen, which keeps falling, his blood pressure, and heart rate, which keeps going up. I was alone today too, which made it hard... lots to deal with. This infection CAN kill him.

This evening around 5 he perked right up, and said I want a pogo, and Annie's macaroni and cheese, marshmallows, and ice cream. HA! I ran out and bought all else but the marshmallows (eww).. he ate all of it. At this point, i didn't care what he was eating.. as long as he was.

Then a couple hours later he got a fever again.

We now need to wait 24-48 hours to see if the antibiotics work.. and if they don't they will just try another one. Sigh...

I feel so bad for him, right at the end and he gets this nasty infection. I spoke with Jane, my Naturopath and as usual she was amazing. She has him on Goldenseal, and more active bacteria.. so that should help. Goldenseal kills Strept and the bacteria will help with the negative effects of the antibiotics. So let's hope in conjunction he will get better soon and we will be home for Christmas.

Love you all and thanks for the love and support.