2nd Induction update

I was up almost all night.. with a fever. Ugh. And of course I took nothing and just let the fever take it's course.. we have fever's for a reason!! They help us. They create antibodies. But man, they SUCK!

I've had this thing with my upper back and neck.. which needs more massage therapy. Then I manage to get a bladder infection. Around 8 p.m. last night I felt cold and achy.. no viral symptoms like runny nose or cough. Then my lower back began to ache and then I knew it was either my bladder or kidneys. It's been a long time since I've had one of those... hmm, could it be this wonderful cocktail of terrible sleeping, bad food mixed with a little stress??

So I managed to weasel my way into Jane's office today. I am such a thorn in her side now!! Poor Jane! She did the pee test and sure enough.. so instead of the usual antibiotics I'm on Uristatin and a woman's probiotic. So let's see how that goes over the next few days.. sigh...

So we made it to clinic this morning for Lyric's counts... and I did something terrible. I totally forgot NOT to feed him this morning. He wasn't supposed to have anything to eat or drink past midnight.. could it be the fever and lack of sleep the night before?? My brain was in a fog this morning and along with my rosy cheeks and black circles I goofed. BUT.. that being said his counts weren't where they wanted them to be anyways. They wanted them a bit higher. His white cells are at 2.9 (originally 77 when he was diagnosed!), his hemoglobin 96 (on the low side), his platelets were at 16 so he had a transfusion, and his absolute neuts were at 1.4!! He is NOT neutropenic! Yay!! It's funny cause he jumped up and down and said I can touch stuff now?? I can go out in stores?? Yay!

Since I fed him an organic pop tart and a glass of grape juice at 6 a.m., so the bitchy anaesthesiologist didn't want to put him to sleep (although technically she could have according to the Doc) .. but now it gives us the weekend at home, together and since he's not neutropenic we can do more things. We are back tomorrow morning for 7:45 for the MRI, and then Monday for counts again.. if they are good we come back again Tuesday for bone marrow test and start chemo Wednesday.. phew! did you get all that? It took her repeating this stuff to me a couple times before it registered in my foggy brain today.

I met another great mom today in clinic of a little girl who has ALL Leukemia. But she too has a very rare genetic mutation. She didn't even qualify for chemo, she went straight to bone marrow transplant and it was un successful. They are going with this foundation next week to Disney.. the mom though was so strong and it seemed as though she's accepted the fate of her little one. Also met this wonderful 13 year old boy today who had a brain tumor. He was full of life and just so happy and inquisitive.. he would tell me things about him then ask me a while later to see if I remembered.. then he would joke. He was there with his family and his 1 yr old baby niece.. he bragged about her non stop, held her on his lap and just played with her. So sweet.

dishes are done, garbage put out.. house is a mess. I do have a few extra days now to clean up. Ugh, time to get into bed and kick ass on this infection.