We've been home since Monday night.. and I've been so busy. They gave us a couple days at home before we have to go back for tests and possible 2nd round of chemo. So I had an opportunity yesterday to get all my running around done.
Between the terrible sleeping conditions at the hospital (a pull out chair..) and stress (I always carry my stress in my shoulders) I have managed to screw up my back and neck. I had a little massage therapy and my chiropractor made several adjustments... but no luck. Apparently the muscles in my neck are tight causing pain in the back of my head and a headache. I'm sure it will go away... maybe I'll have to sneak in a bottle of wine to the hospital.. hehe
Lyric is doing well, no problems at home. We are back tomorrow morning at 8:30 for his blood tests. We will see if his levels have gone up.. we are hoping he is not neutropenic anymore so we can do the bone marrow test and start his second round of chemo. I hate not knowing.. i have no idea if I should be packing and bringing 2 weeks worth of food, clothes and the other things or whether we are waiting till next week. And because it's an hour away it's not like I can just drive home and get it.. hmmm.. I guess I'll pack a bit and see.
Friday a.m., at 7:45 he has another MRI.. to see if the tumors have disappeared. I know the one over his eye has but I don't know about his leg. He still has a little pain.
His hair has almost all fallen out.. I managed to coax him into letting me cut it. He hated it at first but then learnt that it did look a little better.
I learned today too that some friends at the salon I go to are having a fundraiser in November. So amazing.. I am really fortunate to have such wonderful friends and people looking out for us.
I also learned today that I will probably have to sell the house when Lyric gets better.. I can't be working 7 days a week anymore to keep our home. I'm sad about that cause I really love my house.
Between the terrible sleeping conditions at the hospital (a pull out chair..) and stress (I always carry my stress in my shoulders) I have managed to screw up my back and neck. I had a little massage therapy and my chiropractor made several adjustments... but no luck. Apparently the muscles in my neck are tight causing pain in the back of my head and a headache. I'm sure it will go away... maybe I'll have to sneak in a bottle of wine to the hospital.. hehe
Lyric is doing well, no problems at home. We are back tomorrow morning at 8:30 for his blood tests. We will see if his levels have gone up.. we are hoping he is not neutropenic anymore so we can do the bone marrow test and start his second round of chemo. I hate not knowing.. i have no idea if I should be packing and bringing 2 weeks worth of food, clothes and the other things or whether we are waiting till next week. And because it's an hour away it's not like I can just drive home and get it.. hmmm.. I guess I'll pack a bit and see.
Friday a.m., at 7:45 he has another MRI.. to see if the tumors have disappeared. I know the one over his eye has but I don't know about his leg. He still has a little pain.
His hair has almost all fallen out.. I managed to coax him into letting me cut it. He hated it at first but then learnt that it did look a little better.
I learned today too that some friends at the salon I go to are having a fundraiser in November. So amazing.. I am really fortunate to have such wonderful friends and people looking out for us.
I also learned today that I will probably have to sell the house when Lyric gets better.. I can't be working 7 days a week anymore to keep our home. I'm sad about that cause I really love my house.
your little guy's a cutie! even with no hair. :)
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