Ups and Downs

Well.. we went yesterday to Mac to get his blood counts. They were wonderful!! His white count was still low (which is what they want to see of course!!) and he was starting to make some hemoglobin himself. He is still Neutropenic.. but that is to be expected they said for a week or two. He has a healthy appetite, sleeps well, has no nausea or vomiting, drinks his 2L of water daily, pees, poops... they are simply amazed at how well he is doing... and so am I! It feels wonderful to see how hard he is fighting and then seeing the blood test results as proof.

Today started out as a great day, we were to have some pro-bono family photos done of me and the kids before Lyric's hair all falls out. Another wonderful neighbor of ours was putting on a car wash and BBQ for Lyric today too.. had the fire department there, and man there were like 10 firefighters there with the Chief! So Lyric was happy to go into the trucks and they were so happy to meet Lyric. But we couldn't stay cause Lyric wasn't feeling great. I had noticed some petechiae.. little spots on his neck. A sign of low blood platelets. He also had lots of unexplained bruising.. so I got home and immediately called the on call Oncologist. She told me to bring him into Emerg at Mac for a Platelet transfusion. We got there at 1 p.m., and didn't get home until 10. A half hour transfusion lasted most of the day. Why are they so slow in Emerg?? They let us in right away, they had a room all ready for us. We were also told that Emerg was THE WORST place for him to be being Neutropenic. The nurses that were on then came in the room with masks on, but the next shift nurses didn't and I gave them shit! Ohhh.. he's wearing one, so he should be ok.. I said NO, that's not what I was told, and you are dealing with sick people all day! Man oh man.. momma bear can be very protective right now!!

So as Lyric was lying on the bed in emerg we noticed his hair falling out in clumps.. it was everywhere. He ran his hands through his hair and he would have a handful.. at first he was laughing about it and Avery chimed in.. poor sole was making the best of it. Then a few moments later said, Mom.. I don't want to have a shiny bald head. I have a big head. I reassured him his head was beautiful and being bald was ok.. and to be proud of it. I said if he wanted to wear hats, bandanas, beanies, or even a wig he could. It's going to be very weird for me to see him without hair. A constant reminder of how sick he is and how he's being pumped full of poison that is enough to make your hair fall out.

So Lyric was supposed to do a low risk activity tomorrow with his best bud Callum.. Lyric has always wanted to go to the driving range and learn how to hit. There aren't a lot of people there, and there is no real risk of injury.. so we said he could go. But the Resident Oncologist tonight said no.. noope, nooo way. Poor Lyric is not happy.

I have also learned that I cannot make ANY plans even for the day. Because it can change at the last minute.

I ran into the Dad I mentioned in one of my other posts, their daughter whom also has Leukemia and is dying is still doing ok.. they are spending lots of time with her and just waiting... how horrible is that. Waiting.

So we are back at the Mac clinic again on Tuesday for his next blood counts.

I am off to bed.. that Astragalus is kicking ass on this cold I've been fighting. But I can still feel it.. wondering if maybe it's allergies?? hmm... anyways some rest will help nonetheless.

Avery is doing very well through all of this, she's very supportive and even puts up with Lyric when he's in a grumpy mood (which is a side effect of the chemo too..). She is so happy and uplifting, just makes your day.