Febrile

Yesterday Lyric lost this little ol tooth.. it has been loose for quite some time. But with Lyric's Platelets being low I told him to leave it alone. But, I think he pushed it with his tongue and out it popped. Followed was about 20 minutes worth of bleeding. I panicked halfway through and paged the oncologist. But then it finally stopped and ahhhh... I called back and cancelled the page.

Afterwards Lyric, Avery and I were having a wonderful time. We were outside enjoying the warm sunshine with the neighborhood kids cleaning my car. It was a team effort... we all washed separate parts of the car. Of course there was a fight over the window washer... so I decided to take that job. Lyric had a great day. No complaints. Until about 7:30 and he stated he was feeling cold. So I sent him inside to get ready for bed. I came in a few minutes later and checked him temp... 38.8. Great.

So again I paged the Oncologist. She called right away and said I needed to bring him in. At this point he's boiling, but freezing... and complaining his head hurts. So it's now about 8:30. I call Lyric's Dad to come to my house to watch Avery. I frantically packed up.. and of course I get to the hospital and forget some important things.. you know how it is.

We are finally at the hospital and they have a private room ready for us in the Pediatric Unit. They come in perform all sorts of tests.. blood from his Hickman and a peripheral poke.. which of course scares the bejesus out of Lyric. They take urine samples and test all his reflexes and joints. They find a lump in his Lymph node behind his neck. Great.

It is now midnight and they still have poor Lyric awake.. but they are making sure they aren't missing anything, Finally the little guy gets to sleep. The CBC they did proved that Lyric's platelets were at 8. Holy Moly... they don't let it go below 20 usually, before giving a platelet transfusion. But fevers eat up platelets. A little while longer and Lyric would start having nose bleeds that wouldn't be able to stop and the slightest bump he would bleed internally. They gave him a platelet and a hemoglobin transfusion through the night. Lyric was up again around 3 shivering... nurse took his temp and he was actually cold. 35. The blood they transfused was apparently on the cooler side. So she grabbed one of those warmed flannel blankets and I crawled into bed with him and had to soothe and calm him down to get back to sleep.

Morning. We get woken up by a lady calling for Janet ?? They were in the room and discharged the day before. Then about 10 more people call in a span of an hour. Ugh... I just want to SLEEP!

The Doc comes in for a visit and says all the testing came back with great results.. nothing serious to worry about. They did think that maybe Meningitis because of the headache and his eyes were sensitive to light. It turns out it's just a virus.. and he's doing very well considering he has no immune system. No coughing.. runny nose... and I think it may be my fault. I had lowered his dose of Astragalus back to twice a day cause days have passed since his sniffles he had earlier in the week. I should have kept it up. Learning experience there!

The Doc also explains there is no concern for the Lymph node... that it's just the bodies reaction to the virus. But he'll keep an eye on it. He also mentions they got back the results from the bone marrow testing they did on Paul, Avery and I to find a match for Lyric for a possible transplant in the future. Avery is a PERFECT match. How amazing is that. Apparently it's rare. WOW, at least there is some good news! But that's not it! There is more! He continues to tell us the genetic testing he did for the mutations...(this can determine is his body will fight chemo or not.. like that little girl I mentioned in earlier posts... your body can start to reject the chemo) well... are you ready.... HE has NO genetic markers. Which makes him LOW RISK ... he's got a more substantial chance at fighting this!

I am just so happy. He sat there and smiled. Didn't really understand what the Doc was saying but says to me it's good news right mom? Yes by boy... good news.

So Lyric's fever disappeared around 1 pm which is wonderful. We should be going home Monday if all goes well and he doesn't go febrile again. They kept saying they were so surprised at how healthy Lyric has been and they said that AML kids usually are never home for a full week at a time. It's been over a week and he's GREAT! A little bump in the road but that's it. They are also amazed at how healthy he is through this. I am pretty sure it's because of my lovely Jane and the healing food he is eating... Jane says she is sure it's the remedies she has him on.

Well I have finished my delicious decaf Latte here at Williams Coffee Pub across the street... I can't get Wifi at the hospital. But this is a nice break when Lyric goes to sleep and I can catch up on the world beyond this.